March 30, 2026

Cardiovascular Disease – What you don’t know can hurt you

Cardiovascular Disease – What you don’t know can hurt you
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Season 1

Cardiovascular disease is the leading cause of death for adults in the United States, resulting in one death every 33 seconds, according to the CDC and Prevention. Heart disease doesn’t always start with lifestyle—it often starts in your DNA. The mission of the Family Heart Foundation is to save generations of families from heart disease through timely identification and improved care of familial hypercholesterolemia and elevated lipoprotein LP(a) and familial hypercholesterolemia.

ASharpe Outlook is broadcast live Mondays at 8AM PT on K4HD Radio - Hollywood Talk Radio (www.k4hd.com) part of Talk 4 Radio (www.talk4radio.com) on the Talk 4 Media Network (www.talk4media.com). ASharpe Outlook TV Show is viewed on Talk 4 TV (www.talk4tv.com).

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WEBVTT

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This program is designed to provide general information with regards

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to the subject matters covered. This information is given with

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the understanding that neither the hosts, guests, sponsors, or station

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are engaged in rendering any specific and personal medical, financial,

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legal counseling, professional service, or any advice.

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You should seek the services.

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Of competent professionals before applying or trying any suggested ideas.

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Hello, and thank you for tuning in to a Sharp

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Outlook on pay for HD radio and Talk or TV.

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I am Angela Sharp, your host. Our arm chair discussions

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with industry experts will give you the steps, tools and

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information to be successful in business and to prepare you

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to be your best self. Hello, I'm Angela Sharp, and

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I'm happy that you've tuned in today. We have a

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very important topic to discuss with you, cardiovascular disease and

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what we're going to tell you today is probably something

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you've never heard of, but what you don't know can

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hurt you. And so we're going to get into that

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topic and I have two wonderful guests that's going to

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explain everything to you. Cardiovascular disease is the leading cause

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of death or adults in the United States, resulting in

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one death every thirty three seconds. According to the Centers

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for Disease Control and Prevention, heart disease doesn't always start

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with lifestyle. It often starts in your DNA. Imagine that

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what you don't know can hurt you. The mission of

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the Family Heart Foundation, one of our guest is here

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from there, is to save generations of families from heart

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disease through timely identification and improve care of familiar hyper

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cholesterolemia I call it FH and elevated lipoprotein LP little A.

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FH is a genetic lipid disorder, the type of high

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cholesterol folks say runs in the family. The Family Heart

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Foundation is pioneering research, advocacy, and education to help prevent

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heart attacks and strokes caused by elevated lipoprotein A little

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A and familiar hypercholesterolemia FH, two inherited disorders that have

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an impact across generations. They play a critical role in

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driving change and empowering families to navigate their own health.

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The Family Heart Foundation explores the world of inherited cardiovascular conditions,

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including as I said, FH and LPA little A, and

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how they silently shape the health of entire families. In

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this episode, we will sit down and talk about patients, families, conditions,

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and advocates and what it really means when heart disease

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runs in the family. My guests today are very knowledgeable

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about this information. Today I have Casey Milligan Walsh, a

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Family Heart Foundation board member and ambassador and author of

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the memoir The Full Catastrophe, and and Dodge, a nurse

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practitioner with a specialty and lipid disorders who's a senior

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care navigator for the Family Heart Foundation. Casey Milligan Walsh

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has written for The New York Times, Helfington Post, Next Avenue,

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Modern Laws, Hippocampus, Splitlip Magazine, and numerous other outlets. Winning

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memoir The Full Catastrophe All I Ever Wanted? Everything I

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Feared is one of the only mainstream books to discuss

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this familiar hypercolt cholesterolemium and illustrate the impact of early

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deaths due to undiagnosed treatable lipid disorders on surviving children.

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Casey also serves as a board member and ambassador for

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the Family Heart Foundation and Anne Dodge, the senior care

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navigator Family Heart Foundation. She completed her Bachelor of Nursing

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degree at Duke University and her master degree in the

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Pediatric Nurse Practitioner program at the University of Wisconsin Madison.

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She helped implement the first pediatric lipid clinic in Wisconsin

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fourteen years ago, research publications in the areas of pediatric

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lipid screening and pediatric familiar hypercholesterolemia. She is passionate about

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providing education and support to individuals and families with genetic

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cholesterol diseases and other cardiac risk factors, as well as

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improving screening rates in children. She joined the Family Heart

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Foundation as a care navigator after her retirement from the

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lipid clinic. She enjoys the lakes in the north Woods,

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picklebar ball, and spending time with her grandchildren. I like

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to invite my guests to the show right now so

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we can talk about this very important topic that affects

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families and they don't move about it. Hi, ladies, thank

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you for coming.

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Thank you so much for having us.

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Okaysei, I understand you wrote a book about this particular topic.

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Can you tell us more as to what made you

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write this book and what was going on in your life?

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Absolutely well, of course, we are here today to talk

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about familial hypercholesterolemia FH and elevated lipoprotein little A or

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LP little A. In my case, it was FH that

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affected my family. And you know, as you said, we're

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both here from the Family Heart Foundation. I'm a retired

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speech language pathologist and I've been an ambassador in a

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board since twenty eighteen and now a board member for

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a couple of years. My book, The Full Catastrophe, the

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title is taken from zorb the Greek where he the

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boss asked Zoraba, are you married? And he says, of course,

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am I not a man? Of course I'm married. I

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have it all, the wife, children have everything. The full catastrophe,

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so full catastrophe is meant to talk about the enormity

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of life, the good, the bad, the struggles, all of

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the things that make up a full life.

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And of course, in my.

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Story, the full catastrophe kind of has a double meaning

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because I wanted that full catastrophe and then I got

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sort of a literal catastrophe, but just a brief story.

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Synopsis of the book will which will kind of help

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explain why I wrote it. It's really a hopeful story

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of the search for belonging after repeated loss, and navigating

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uncertainty and learning to live with grief beside joy. And

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I like to say that first because the plot sounds

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pretty dismal, and it is a hopeful, joyful book. But

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if I talk about the plot first, it doesn't seem

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that way. So I was orphaned at twelve. My parents

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died within ten months of each other. My father died

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of a heart attack at fifty. My mother had breast cancer,

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so she was the one that was expected to die,

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and then my father died suddenly. And then I lost

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my only sibling at twenty. He died of a heart

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attack at twenty seven, completely unexpectedly, of course, And so

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that really set me off on a search for belonging,

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a search for home that rose above every other goal

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I had in life. And so I married and had

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three children and thought I'd created that life that I'd

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searched for. But when my marriage began to fall apart,

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I embraced kind of a new sort of spirituality that

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carried me through a hostile divorce and a contentious custody battle.

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But then the unthinkable happened. My twenty year old son died,

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and not from FH, though he did have FH. But

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he died in a single car crash, and of course

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that loss was devastating, but the spiritual strength I had

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cultivated really, you know, carried me through, helped me navigate

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my grief and find a deeper sense of belonging. And

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through it all, i'd say, I learned that life rarely

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goes according to plan, but even in the most heartbreaking moments,

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there's room for you know, hope and unexpected peace. And

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it really is about embracing that full catastrophe of life.

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And I tell you all of that, and you mentioned

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this in the beginning, but part of one of the

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many reasons I wrote the book is and I think

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maybe I didn't know this until I was writing it, right,

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you know, you learn a lot as you write that.

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It does really illustrate how the lives of children who

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are left or even you know, surviving young adults after

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early loss, those losses really impact the decisions they make

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for the rest of their lives. And in my case,

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two out of three of those losses were due to

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a highly treatable, common undiagnosed genetic lipid disorder. In my case,

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it was familial hypercholesterolemia, And so that's a big reason

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that the foundation exists so we can prevent this from

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happening for other people. You know, I think this book

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is likely the only mass consumption book, not a medical

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book or a self help book where I don't just say, oh,

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my father died of a heart attack. I talk I

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call it by name, I talk about, you know, just broadly,

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what the diagnosis points are, and I think it also

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illustrates it. For many of us with these disorders, grief

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is kind of the elephant in the room. I mean,

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I do a lot of work in the grief space,

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and I write a lot about grief. But for most

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of us, hopefully fewer these days, as children are getting

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diagnosed earlier, we have a lot of early loss in

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our families because these disorders weren't diagnosed in decades past.

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You know, after my brother died, I was twenty A

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year later I was diagnosed, which is pretty remarkable considering

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that was nineteen seventy six and a lot of people

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are not accurately diagnosed even now. And then subsequently, two

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of my three children were diagnosed with FH, and one

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of my great grandchildren has FH and and when she speaks,

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I'm sure we'll talk about how it's inherited and how

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common it is for that many family members to already

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have it. And I think that's about everything I want

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to say for right now. I know Anne has a

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lot to add.

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Yeah, absolutely, I just want to say, I'm I'm really

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sorry for your losses. I I haven't experienced a child,

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but I just recall. And this is why this topic

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is so important. There's been a lot of heart disease

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in my family. And I remember my brother who had

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been in the military and he came home and he

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passed away. In fact, no one knows knew that he

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was ill. His friends found him. He had been deceased

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for like four days.

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I'm so sorry, and.

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It was a massive heart attack. He was in that

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reading the Bible. It was on his chest when they

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found him. And no one knows, I mean, because he

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was strong and healthy and happened. And so, you know,

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I want to know what's in my family, you know, genetics,

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so that I can you know, let my children and

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children's children and children's child children to be avoid some

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of these things happening. You know, like that, you know,

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you know, listening to what a Casey was saying, and

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can you give us a little more perspective as to

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what this problem is and why was the Family Heart

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Foundation originally created.

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Sure, thank you and thank you for having me. And

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that's a great question. Our CEO. Her name is Catherine Wilman,

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and she created the foundation, I believe in twenty eleven.

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She was thirty nine years old, out gardening, super healthy, active,

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you know, looked like perfect health.

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And she was having chest.

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Pain and so she called the ambulance and they were

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like reluctant to take her in because they're like, it's

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not a heart attack, You're fine. And it kept getting worse,

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and she went in and she was having a heart

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attack and by the next day she'd had bypass surgery.

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At age thirty nine, she found out that she had

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an LDL club stroll in the three hundreds, which she

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knew someone early on in her life had told her

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that it was elevated, that nobody knew what it was

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or did anything about it. Well, that's a key signal

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for familial HYPERCHOLESTEROLENEA or FH. There's two key signals for it.

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You don't need genetic testing to diagnose this. The signals

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are a very high LDL which will be present at

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least since age two. For kids, children it would be

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an LDL generally greater than one sixty. For adults, the

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LDL would generally be greater than one ninety. Normal LDL

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for any healthy person adult is less than one hundred.

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So when you get to that one sixty.

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And one ninety range, and then you have a family

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history of it runs in the family, or an early

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heart attack or early stroke. Even those two criteria, the

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early family history and the high LDL since early on

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our meet diagnostic criteria for familial HYPERCHOLESTEROLENEA. So Catherine took

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this energy and probably anger. I would imagine that no

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one knew about what she had I and she translated

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this into this incredible worldwide foundation. Like you said, we

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do research, advocacy, and education, and we have this incredible

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group of almost three hundred ambassadors like Casey around the

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country to help move.

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The word around.

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And we've developed free screening programs for this which I

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can go into later as well.

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Oh wow, incredible. So we're not talking about that this

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being a rare disease. You're saying that there are certain

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symptoms that when we're talking to our doctors, are they

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aware that this might be leading to this condition.

227
00:16:06.399 --> 00:16:07.720
Yeah, that's a great question.

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So familiar hypercholesterolemia is the genetic disease that has the

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highest mortality rate of any genetic disease, and hardly anyone

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knows knows about it, even doctors. It's very common. It

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affects one in two hundred and fifty people, and each

232
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of those people that has the disease has a fifty

233
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to fifty chance passing on to each of their offspring.

234
00:16:40.720 --> 00:16:45.440
So if like Casey having it having three children, two

235
00:16:45.519 --> 00:16:48.200
of her children had it, so you either pass it

236
00:16:48.200 --> 00:16:51.200
on or you don't. There's no gray area because it's

237
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a dominant genetic condition. So unfortunately doctors are not diagnosing

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them properly and are often unaware of it. In fact,

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only ten percent, maybe fifteen percent of people in the

240
00:17:08.799 --> 00:17:14.279
United States with FH are diagnosed, and the very first

241
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symptom is an early heart attack. So this early heart attack,

242
00:17:19.559 --> 00:17:24.319
like Casey mentioned, can happen from twenties to fifties. Fifty

243
00:17:24.359 --> 00:17:27.799
percent of men diagnosed with FH have their first heart

244
00:17:27.839 --> 00:17:30.839
attack by age fifty, and it could be in their twenties.

245
00:17:30.519 --> 00:17:31.400
Thirties forties.

246
00:17:32.160 --> 00:17:36.160
Thirty percent of women with FH have their first MII

247
00:17:36.640 --> 00:17:39.319
by age sixty. Here they're supposed to be in the

248
00:17:39.319 --> 00:17:42.240
prime of their life. But the people have their first

249
00:17:42.319 --> 00:17:45.759
heart attack in their twenties, thirties, forties, fifties, and there's

250
00:17:45.960 --> 00:17:50.519
no outward symptoms of this. So these people look healthy,

251
00:17:50.640 --> 00:17:54.559
they're active. These are the people that eat grass and

252
00:17:54.680 --> 00:17:58.319
run marathons in their forties and drop dead at the

253
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finish line and everyone's going, what the heck happened?

254
00:18:01.559 --> 00:18:02.960
He was perfectly healthy.

255
00:18:03.599 --> 00:18:09.559
No, this is an undiagnosed condition that is diagnosable in childhood,

256
00:18:10.000 --> 00:18:14.039
and if diagnosed in childhood, the early heart disease could

257
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be prevented to the amount that they never had this

258
00:18:17.559 --> 00:18:18.880
disease in the first place.

259
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So that's why it's so important.

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Our mission one of our missions, and this is agreed

261
00:18:25.720 --> 00:18:30.799
upon by the American American Academy of Pediatrics. It's in

262
00:18:30.880 --> 00:18:36.200
the guidelines. Every single child in the USA needs to

263
00:18:36.279 --> 00:18:39.160
have a lipid panel at age nine or ten or

264
00:18:39.200 --> 00:18:42.039
at age two if they have an early family history

265
00:18:42.039 --> 00:18:46.480
of heart disease, and that also is not being done,

266
00:18:46.960 --> 00:18:49.559
and only five to ten percent of children are being.

267
00:18:49.400 --> 00:18:59.319
Screened, and there's a good reason for that.

268
00:18:54.119 --> 00:19:01.039
Sorry, that's what we say, like okay.

269
00:19:03.920 --> 00:19:09.960
So it really comes down to lack of awareness. And

270
00:19:10.960 --> 00:19:16.640
also our medical culture is designed to treat problems when

271
00:19:16.640 --> 00:19:20.799
they arise. So you go into a cardiologist and they go, oh,

272
00:19:20.839 --> 00:19:23.319
you look great. Come back when you have some chest pain,

273
00:19:23.839 --> 00:19:27.559
I'll see you then. Or when they have the early

274
00:19:27.559 --> 00:19:30.359
heart attack at age forty, they're like, why did that happen?

275
00:19:31.440 --> 00:19:34.720
They usually don't even check LPA or give.

276
00:19:34.559 --> 00:19:38.480
Them a diagnosis of FH or screen other family members.

277
00:19:39.240 --> 00:19:43.160
So this is the reason why the Family Heart Foundation

278
00:19:43.359 --> 00:19:48.240
exists is to raise awareness. We have a worldwide summit

279
00:19:48.480 --> 00:19:52.759
open to patients, all the experts in the world every

280
00:19:52.880 --> 00:19:55.000
fall in a major city in the US.

281
00:19:55.680 --> 00:19:56.920
Anyone is invited.

282
00:19:57.519 --> 00:20:02.279
It is pivotal in educating the war and providers about

283
00:20:02.720 --> 00:20:03.920
FH and LPA.

284
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Well, you out there that's watching, you need to ask

285
00:20:11.359 --> 00:20:16.720
your doctor about it and insist that a test be run.

286
00:20:17.559 --> 00:20:19.759
I mean, it could save your life, it could save

287
00:20:19.799 --> 00:20:25.160
your child's life. Just ask them about it, because if

288
00:20:25.160 --> 00:20:27.559
they're not informed, they're not informed, and that's going to

289
00:20:27.599 --> 00:20:29.880
be what what they don't know is going to hurt

290
00:20:29.960 --> 00:20:33.359
you as badly as what you don't know is going

291
00:20:33.440 --> 00:20:37.039
to hurt you. So we need to join the Family

292
00:20:37.200 --> 00:20:41.200
Art Foundation and get this word out because there are

293
00:20:41.359 --> 00:20:45.279
lives at stake, and let's get this information out. I

294
00:20:45.359 --> 00:20:48.519
know you're busy on social media. Now's a good reason

295
00:20:48.559 --> 00:20:56.640
to be busy on social media. Okay, go Angela.

296
00:20:55.839 --> 00:21:00.200
Yes, Angela, I have a couple of things I thought

297
00:21:00.240 --> 00:21:02.599
of his Anne was talking. She gave such a great

298
00:21:02.759 --> 00:21:06.359
thorough explanation of the history of the foundation and all

299
00:21:06.400 --> 00:21:11.880
of the issues that we face. My cholesterol total cholesterol

300
00:21:12.039 --> 00:21:17.279
untreated was four fifty. Most people's is like two hundred

301
00:21:17.400 --> 00:21:22.039
or less, right total? And am I right usually? And

302
00:21:22.119 --> 00:21:25.720
so I'm that patient that has like all my levels

303
00:21:25.759 --> 00:21:27.920
from nineteen eighty on.

304
00:21:29.160 --> 00:21:29.720
I didn't.

305
00:21:30.000 --> 00:21:33.359
Back then, they were talking a lot about things like ratios,

306
00:21:33.440 --> 00:21:36.279
not focusing so much on what your LDL. As we

307
00:21:36.440 --> 00:21:40.880
know now, the LDL is the key factor. But extrapolating

308
00:21:40.920 --> 00:21:45.680
from that, my untreated LDL was certainly in the three hundreds.

309
00:21:46.160 --> 00:21:46.880
I think I.

310
00:21:46.920 --> 00:21:51.079
Attribute having an accurate diagnosis all of those years ago.

311
00:21:51.119 --> 00:21:54.079
I mean, I've basically been treating my FH for fifty

312
00:21:54.200 --> 00:21:58.039
years now, to the fact that I had a brother

313
00:21:58.079 --> 00:22:00.960
who had just died at twenty seven. So if they

314
00:22:00.960 --> 00:22:03.279
were going to pay any attention to anyone, they were

315
00:22:03.319 --> 00:22:06.480
going to pay attention to me. I think what I

316
00:22:06.519 --> 00:22:09.400
find a lot when I talk to people nowadays, and

317
00:22:09.440 --> 00:22:12.359
even I'm speaking from my own family, is that the

318
00:22:12.400 --> 00:22:16.079
people in our family who died young, the next generation

319
00:22:16.279 --> 00:22:19.359
didn't know them. It does not seem as urgent to them,

320
00:22:19.759 --> 00:22:22.799
and maybe not as urgent to a physician when they say, well,

321
00:22:22.839 --> 00:22:25.960
I think I had a grandfather who died young, or

322
00:22:25.960 --> 00:22:29.680
an uncle I never met, So there seems to be

323
00:22:29.799 --> 00:22:34.400
like a lack of urgency, which shouldn't make a difference,

324
00:22:34.480 --> 00:22:39.559
but unfortunately it does. And you know, and kind of

325
00:22:39.640 --> 00:22:42.359
use the quotes around runs in the family because one

326
00:22:42.359 --> 00:22:45.000
of the things that we always say at the foundation

327
00:22:45.799 --> 00:22:49.920
is that runs in the family is not a diagnosis, right, like, oh,

328
00:22:49.960 --> 00:22:52.160
you know, high cholesterol runs in my family.

329
00:22:52.720 --> 00:22:54.160
I have a lot of people say that.

330
00:22:54.119 --> 00:22:56.519
To me when I speak in the community, and that

331
00:22:56.680 --> 00:23:03.440
always pricks your ears up, because I've talked to actually

332
00:23:03.519 --> 00:23:05.720
saw a handyman at the house and well, you know,

333
00:23:05.799 --> 00:23:07.559
it's just in the family, and it's hard for them

334
00:23:07.599 --> 00:23:10.839
to understand that that there's a genetic diagnosis and you

335
00:23:10.920 --> 00:23:15.839
can get accurate treatment for that there's one other thing. Oh,

336
00:23:15.920 --> 00:23:18.440
and I'm sure Anne was probably going to get to

337
00:23:18.480 --> 00:23:21.039
this that not only is the diagnosis and she can

338
00:23:21.079 --> 00:23:25.440
talk more about this. The initial diagnosis is what opens

339
00:23:25.480 --> 00:23:29.119
the door, of course to the treatments. But also as

340
00:23:29.160 --> 00:23:32.480
I talked to folks over and over again, they kind

341
00:23:32.480 --> 00:23:35.160
of they got a STAT and they got their cholesterol

342
00:23:35.240 --> 00:23:38.400
down a little, it's not at the level that we'll

343
00:23:38.400 --> 00:23:41.359
protect them. And a lot of physicians, even if they

344
00:23:41.440 --> 00:23:46.519
do prescribe a STAT and don't there are other medications now,

345
00:23:46.559 --> 00:23:50.079
there are a lot of medications don't get that LDL

346
00:23:50.519 --> 00:23:52.759
to a safe level and keep it there.

347
00:23:53.039 --> 00:23:55.119
And I'm sure you have a lot more to say

348
00:23:55.119 --> 00:23:55.640
about that.

349
00:23:56.640 --> 00:24:00.880
Yeah, yeah, well I was just one. I mean, I

350
00:24:00.960 --> 00:24:05.759
hear what you're saying, Casey, and and I'm just now

351
00:24:05.799 --> 00:24:11.400
becoming aware, and goodness, I do feel a little guilty

352
00:24:11.440 --> 00:24:15.559
that I didn't know this so I could protect my

353
00:24:15.599 --> 00:24:20.400
family more so, I mean, how did how do you

354
00:24:20.559 --> 00:24:26.400
navigate through the guild or their fear of a genetic diagnosis?

355
00:24:26.960 --> 00:24:31.799
Yeah, yeah, You've had a very important point. People who

356
00:24:31.839 --> 00:24:36.119
are diagnosed with this, especially later, who've either had early

357
00:24:36.160 --> 00:24:39.519
events or someone in their family has their early events

358
00:24:40.119 --> 00:24:43.599
they have been blaming themselves up until the point they

359
00:24:43.640 --> 00:24:47.480
get this diagnosis. They're like, I'm eating wrong, I'm not

360
00:24:47.640 --> 00:24:53.319
exercising enough, I'm overweight, and they blame themselves and there

361
00:24:53.359 --> 00:24:59.640
is incredible amount of guilt. So this disease affects anyone

362
00:25:00.000 --> 00:25:06.200
any health level, and like I mentioned, it is not treatable,

363
00:25:06.799 --> 00:25:10.720
even though diet and exercise are extremely important. It is

364
00:25:10.799 --> 00:25:15.359
not treatable with lifestyle factors. It must be diagnosed early

365
00:25:16.359 --> 00:25:22.160
and treated appropriately. Appropriately with appropriate medications and treatments are approved.

366
00:25:22.160 --> 00:25:23.240
Starting at age eight.

367
00:25:23.920 --> 00:25:26.400
And I think that might be one of the issues

368
00:25:26.960 --> 00:25:31.000
with adult doctors kind of ignoring this as a hereditary thing,

369
00:25:31.119 --> 00:25:36.319
because I think the pediatric world isn't well understood as

370
00:25:36.400 --> 00:25:41.000
far as that this is a diagnosis. We have many

371
00:25:41.119 --> 00:25:44.799
drugs available approved to treat children, and if you get

372
00:25:44.920 --> 00:25:49.400
children on treatment at age eight, nine, ten, even teens,

373
00:25:50.119 --> 00:25:54.160
they will not have an early heart attack. In Casey's

374
00:25:54.480 --> 00:25:58.400
brother would have been here if he started treatment at

375
00:25:58.400 --> 00:26:03.839
age eight, and any adult parent that hasn't. We try

376
00:26:03.839 --> 00:26:08.200
to relieve their guilt by explaining how this disease occurs.

377
00:26:09.000 --> 00:26:11.000
And I explain it to the kids and the clinic

378
00:26:11.079 --> 00:26:14.240
to make it easy to understand. You didn't do anything

379
00:26:14.279 --> 00:26:18.160
to make this happen. Your mom passed on a gene

380
00:26:18.200 --> 00:26:20.359
just like your blue eye color. You have blue eyes,

381
00:26:20.480 --> 00:26:23.839
you know, just like your brown hair. Your mom passed

382
00:26:23.839 --> 00:26:27.359
on a gene that has you have little dump trucks

383
00:26:27.400 --> 00:26:32.400
in your liver that remove LDL from your liver, and

384
00:26:32.680 --> 00:26:35.799
LDL if you don't remove it properly, can build up

385
00:26:35.799 --> 00:26:39.519
over many years and cause early heart disease. But the

386
00:26:39.720 --> 00:26:43.480
gene problem that your mom passed down to you causes

387
00:26:43.640 --> 00:26:47.319
the dump trucks to either break down or there's not

388
00:26:47.559 --> 00:26:51.640
enough of them. But we have medicines to repair the

389
00:26:51.759 --> 00:26:55.319
dump trucks and to carry the LDL out and you

390
00:26:55.400 --> 00:26:56.319
will be fine.

391
00:26:57.240 --> 00:26:57.920
So then they.

392
00:26:57.839 --> 00:27:01.160
Don't mind taking the medicine because they're envisioning their dump

393
00:27:01.200 --> 00:27:01.920
trucks working.

394
00:27:02.559 --> 00:27:02.759
You know.

395
00:27:02.799 --> 00:27:07.000
It's not like a scary thing. And they're completely safe

396
00:27:07.039 --> 00:27:10.079
in children. In eleven years of prescribing statins in the

397
00:27:10.079 --> 00:27:14.920
clinic to children with fage, probably over three hundred FAGE patients,

398
00:27:15.279 --> 00:27:18.839
one side effect was a muscle pain after a run

399
00:27:18.960 --> 00:27:22.240
the kid did We checked the ck, The k was fine,

400
00:27:22.559 --> 00:27:26.680
not a single muscle problem, no issues. They're incredibly safe

401
00:27:27.200 --> 00:27:30.839
if I know that there's a myth about stantons. I

402
00:27:30.839 --> 00:27:34.480
would like to refer anyone listening to our Family Heart

403
00:27:34.559 --> 00:27:39.480
Foundation YouTube channel. There's a very short ten to fifteen

404
00:27:39.519 --> 00:27:43.160
minute video called Ask Me Anything about Stantons with one

405
00:27:43.160 --> 00:27:48.119
of our medical Stanton experts, and you will find every

406
00:27:48.240 --> 00:27:51.519
myth addressed. I probably don't have time to go into

407
00:27:51.559 --> 00:27:53.799
all of those now, I can if you want, but

408
00:27:54.720 --> 00:27:58.599
they are very, very safe. There's been studies of people

409
00:27:58.640 --> 00:28:02.759
on sugar pill, thousands of people studies on the statin.

410
00:28:03.240 --> 00:28:07.000
The sugar pill group has higher side effects rate of

411
00:28:07.039 --> 00:28:11.359
side effects than the statin group. So Stanton's are first

412
00:28:11.400 --> 00:28:15.480
line treatment in children even adults. People have to accept

413
00:28:15.519 --> 00:28:18.119
that if you have this diagnosis, you will be on

414
00:28:18.240 --> 00:28:23.079
lifelong statin therapy, and like Casey mentioned, many people need

415
00:28:23.119 --> 00:28:27.519
more than one therapy. Totally fine, but the new guidelines

416
00:28:27.640 --> 00:28:31.920
just came out two weeks ago from the American Cardiology

417
00:28:31.960 --> 00:28:38.319
College and the American Heart Association, and double or triple

418
00:28:38.400 --> 00:28:42.240
therapy if needed. To get your LDL to the appropriate goal.

419
00:28:42.720 --> 00:28:46.079
Everyone should have an LDLs than one hundred. People with

420
00:28:46.279 --> 00:28:49.839
FH without any events should have an LDL goal of

421
00:28:49.960 --> 00:28:54.000
less than seventy and anyone that's had a cardiac event

422
00:28:54.160 --> 00:28:57.640
or a stroke should have an LDLs and fifty five.

423
00:28:58.200 --> 00:29:03.000
That's completely obtainable with the correct medications that are safe

424
00:29:03.000 --> 00:29:04.000
and approved today.

425
00:29:05.599 --> 00:29:08.160
You know, I can put a face on that, because,

426
00:29:09.240 --> 00:29:11.799
like I said, I was diagnosed in nineteen seventy six

427
00:29:12.039 --> 00:29:16.799
before statin's a good decade before statins were even released.

428
00:29:17.400 --> 00:29:20.319
So my whole life I've just kind of taken whatever

429
00:29:21.279 --> 00:29:24.960
was available back then. It was by a lacid sequestrance,

430
00:29:25.039 --> 00:29:28.160
this awful orange powder that you had to mix with

431
00:29:28.279 --> 00:29:31.920
water and choke down every day. And my poor little

432
00:29:31.920 --> 00:29:35.000
guy who was diagnosed it too. I don't know how

433
00:29:35.160 --> 00:29:40.039
in nineteen eighty one, I knew before the Internet and

434
00:29:40.200 --> 00:29:42.240
all of those things, but I pushed to have him

435
00:29:42.279 --> 00:29:46.079
tested at age two, and he in fact did have FH.

436
00:29:46.839 --> 00:29:48.960
So yes, we struggled through those for a lot of

437
00:29:49.000 --> 00:29:53.160
years until statins came out, and I probably have taken

438
00:29:53.240 --> 00:29:57.920
every statin when they were released, But it wasn't until

439
00:29:58.079 --> 00:30:02.279
twenty seventeen that the newest class of drugs, well not

440
00:30:02.400 --> 00:30:06.640
newest now, but the game changers, the PCSK nine inhibitors.

441
00:30:07.119 --> 00:30:09.559
They were released before that, but I started on one

442
00:30:09.599 --> 00:30:14.319
in twenty seventeen, and so we never were able to

443
00:30:14.359 --> 00:30:17.200
get my LDL to what you would call the safe zone,

444
00:30:17.200 --> 00:30:20.359
though it was significantly lower than it would have been

445
00:30:20.400 --> 00:30:25.160
without medication. With the PCSK nine inhibitor, my LDL has

446
00:30:25.240 --> 00:30:30.599
been as low as fourteen. It's mostly in the thirties,

447
00:30:31.160 --> 00:30:34.880
and I take another medication as well, no side effects

448
00:30:34.880 --> 00:30:38.839
from any of them. And so oddly I had never

449
00:30:38.920 --> 00:30:42.440
had an angiogram, which is the more invasive procedure where

450
00:30:42.440 --> 00:30:45.400
they actually look inside your arteries to see what's going

451
00:30:45.440 --> 00:30:49.079
on in there, until I had a reason to have

452
00:30:49.119 --> 00:30:54.680
one about a year ago, and I was prepared for

453
00:30:54.799 --> 00:30:58.440
stints possibly. I mean, I'm seventy one. The oldest anyone

454
00:30:58.480 --> 00:31:02.480
in my family ever lived to was fifty. And actually

455
00:31:02.599 --> 00:31:04.160
it looked pretty good in there.

456
00:31:04.200 --> 00:31:05.279
I did have some.

457
00:31:05.279 --> 00:31:10.079
Atherosclerosis, but nowhere near the levels that would require a

458
00:31:10.160 --> 00:31:15.240
stand or so it was really kind of cool to

459
00:31:15.319 --> 00:31:18.240
get a look in there after fifty years of treatment

460
00:31:18.440 --> 00:31:21.039
and see that it really did make a difference, even

461
00:31:21.119 --> 00:31:26.799
though my treatment began before our most effective medications were released.

462
00:31:27.039 --> 00:31:30.759
So yeah, I was actually was it was. I had

463
00:31:30.799 --> 00:31:33.400
a little heart issue, and it could have been upsetting

464
00:31:33.400 --> 00:31:36.319
that I'm like so happy it happened because I got

465
00:31:36.359 --> 00:31:41.160
to see that this really makes a difference, and you know,

466
00:31:41.240 --> 00:31:44.400
as ambassadors, and I'm sure and does the same thing.

467
00:31:44.720 --> 00:31:45.680
Everywhere we are.

468
00:31:46.599 --> 00:31:49.400
My husband is an ambassador as well, though he doesn't

469
00:31:49.440 --> 00:31:52.519
have fhor elevated LP little A, but everywhere we go

470
00:31:53.200 --> 00:31:55.200
this is the first thing we talk about. In fact,

471
00:31:55.240 --> 00:31:58.440
when I do book events, often there with groups of

472
00:31:58.440 --> 00:32:02.720
older people, middle aged, shoulder people, and before I start,

473
00:32:02.759 --> 00:32:06.400
I usually give my little spiel. And so we were

474
00:32:06.440 --> 00:32:11.000
at a rally last weekend and we ended up doing.

475
00:32:10.680 --> 00:32:12.000
Our little talk with some people.

476
00:32:12.079 --> 00:32:15.240
And the reason I mentioned that is, like you, Angela,

477
00:32:15.759 --> 00:32:19.799
it's super common for people to say, WHOA, you know,

478
00:32:19.960 --> 00:32:23.599
my brother, my father, my uncle. I wonder if that's

479
00:32:23.640 --> 00:32:27.359
what this could be because Fh's is common as type

480
00:32:27.359 --> 00:32:30.960
one diabetes, but no one's ever heard of it, so

481
00:32:31.359 --> 00:32:33.759
it's not uncommon at all.

482
00:32:34.519 --> 00:32:38.359
Yeah, Well, I was wondering, are you facing any kind

483
00:32:38.400 --> 00:32:42.960
of like policy barriers right now? It's kind of, you know,

484
00:32:44.119 --> 00:32:49.359
resisting accepting this this knowledge and putting it in place.

485
00:32:50.079 --> 00:32:53.920
It's because I'm still kind of like, don't found it.

486
00:32:54.480 --> 00:32:57.079
You're going to school, you're getting all this education, you're

487
00:32:57.160 --> 00:33:01.359
studying everything, you know, anything related to the heart, anything remated,

488
00:33:01.839 --> 00:33:05.359
related to the veins, everything, the bloods will flow, and

489
00:33:05.480 --> 00:33:08.400
you just kind of like let that pass by. I

490
00:33:08.400 --> 00:33:12.480
mean it's you know, some kind of barriers there that's

491
00:33:12.599 --> 00:33:18.160
possibly or potentially you know, resisting this knowledge.

492
00:33:19.240 --> 00:33:21.960
I don't think it's resisting. I think it's just that

493
00:33:22.039 --> 00:33:25.640
it was first of all, LPA. We've known about it

494
00:33:25.680 --> 00:33:29.799
for a long time, and many doctors say, I don't

495
00:33:29.839 --> 00:33:32.359
want to check it because there's nothing we can do

496
00:33:32.440 --> 00:33:35.160
about it. So why check something that's just going to

497
00:33:35.160 --> 00:33:39.519
scare somebody. Well, that's not the case. You can do

498
00:33:39.599 --> 00:33:42.440
something about it. Even though we don't have any medications

499
00:33:42.519 --> 00:33:46.519
right now designed to lower the LPA, there's several in

500
00:33:46.680 --> 00:33:51.119
research right now going The trials are going very well,

501
00:33:51.599 --> 00:33:57.160
showing safety and efficacy up to lowering LPA by ninety percent.

502
00:33:58.319 --> 00:34:00.960
The first drugs, we have no idea when they're going

503
00:34:01.039 --> 00:34:04.039
to actually be approved, but they're getting close and we're

504
00:34:04.039 --> 00:34:08.599
thinking within two to three years. But aside from that,

505
00:34:09.119 --> 00:34:12.519
they don't understand and we are trying to incorporate this

506
00:34:12.679 --> 00:34:16.519
more into medical school curriculums. Like I said, that's the

507
00:34:16.519 --> 00:34:19.360
purpose of the foundation. We've been reaching a lot of people,

508
00:34:20.760 --> 00:34:25.039
but I agree it's been a very very big missed

509
00:34:25.239 --> 00:34:30.519
educational component in any medical training, and I would love

510
00:34:30.639 --> 00:34:34.559
to see that increase, and so we're working on that.

511
00:34:34.679 --> 00:34:38.119
But at the same time, we have so many volunteers

512
00:34:38.119 --> 00:34:43.920
and ambassadors that our ambassadors actually are bringing this information

513
00:34:44.000 --> 00:34:47.599
to their physicians and educating their physicians. And as a

514
00:34:47.639 --> 00:34:52.320
care navigator, I also get calls from physicians whose patients

515
00:34:52.360 --> 00:34:55.199
have referred them to me, and those are probably some

516
00:34:55.239 --> 00:34:58.039
of the most rewarding calls that I get. I've had

517
00:34:58.079 --> 00:34:59.960
some that call me back two or three or four

518
00:35:00.119 --> 00:35:05.679
times asking about particular patients. So it's a trickling effect.

519
00:35:05.880 --> 00:35:11.639
It's not enough by far, but guidelines also are going

520
00:35:11.719 --> 00:35:14.559
to really help a lot, and that's why we're all

521
00:35:14.639 --> 00:35:18.800
so excited about these recent guidelines that just came out

522
00:35:19.239 --> 00:35:22.960
that state that every single adult should have their LPA

523
00:35:23.159 --> 00:35:27.039
checked and every single child should be screened at age

524
00:35:27.159 --> 00:35:28.039
nine or ten.

525
00:35:29.760 --> 00:35:30.480
And then we.

526
00:35:31.119 --> 00:35:37.119
Educate about cascades family members screening family members in all

527
00:35:37.159 --> 00:35:39.880
of our care navigation and all of our resources on

528
00:35:39.920 --> 00:35:40.559
the website.

529
00:35:40.599 --> 00:35:42.800
So no, we totally agree with you.

530
00:35:42.920 --> 00:35:43.199
This is.

531
00:35:44.719 --> 00:35:48.239
The reason we exist, and we are making progress and

532
00:35:49.119 --> 00:35:50.920
it is slow, but it is improving.

533
00:35:52.039 --> 00:35:55.199
And I wonder if you can explain a little more clearly.

534
00:35:57.400 --> 00:36:00.679
We've been talking about FH and elevated lt A, but

535
00:36:00.719 --> 00:36:03.320
I don't think we've made it really clear what LP

536
00:36:03.440 --> 00:36:05.519
LITTLEA is as opposed to FH.

537
00:36:05.719 --> 00:36:06.760
Yeah, that would be great.

538
00:36:06.960 --> 00:36:11.920
Yeah, Okay, So these are two completely separate genetic disorders.

539
00:36:12.760 --> 00:36:18.840
You can have one, or both or neither. LDL is

540
00:36:18.960 --> 00:36:24.119
the culprit infamiliar hypercholesterolemia over the one sixty or one ninety.

541
00:36:24.960 --> 00:36:30.519
Lipoprotein little A is similar to the LDL particle with

542
00:36:30.639 --> 00:36:34.440
some attachments around the edge which make them stickier and

543
00:36:34.480 --> 00:36:38.199
worse for build up in your arteries with plaque. But

544
00:36:38.519 --> 00:36:45.039
LPA we found is actually worse than LDL And only

545
00:36:45.239 --> 00:36:48.440
one to maybe five percent of people in the country

546
00:36:48.440 --> 00:36:50.960
have been screened for lipoprotein.

547
00:36:50.239 --> 00:36:51.880
A and.

548
00:36:53.199 --> 00:36:56.159
Maybe and only ten to fifteen percent of people who

549
00:36:56.159 --> 00:36:57.599
have FH are diagnosed.

550
00:36:58.199 --> 00:37:02.920
So FH is the high ld L and LPA. We

551
00:37:03.039 --> 00:37:06.239
call it a triple threat. It does three things.

552
00:37:07.480 --> 00:37:11.000
It creates plaque inside of the arteries.

553
00:37:11.119 --> 00:37:13.039
And when you heard Casey say.

554
00:37:12.840 --> 00:37:16.960
The word afroosclerosis, what that word means is plaque and

555
00:37:17.079 --> 00:37:20.360
junk building up on the walls of your arteries that

556
00:37:20.440 --> 00:37:23.719
eventually clot off or break off and cause heart attacks

557
00:37:23.760 --> 00:37:29.320
or strokes. That's what athroosclerosis is. So LPA leads to athosclerosis,

558
00:37:29.400 --> 00:37:35.079
the build up of plaque. It's prothrombotic. The word thrombosis

559
00:37:35.119 --> 00:37:40.119
means clot so it helps clot formation. Strokes are made

560
00:37:40.159 --> 00:37:44.199
of clots, so it can increase your stroke risk two

561
00:37:44.239 --> 00:37:49.480
to four times. And then it also creates inflammation the

562
00:37:49.599 --> 00:37:53.880
inside of our arteries do not like inflammation. LDL causes

563
00:37:53.920 --> 00:37:58.119
that also, But when you get LPA and LDL together,

564
00:37:58.519 --> 00:38:02.239
I explain to myle and care navigation, it's like two

565
00:38:02.280 --> 00:38:03.760
knotty boys in kindergarten.

566
00:38:04.079 --> 00:38:05.559
LDL and LPA.

567
00:38:05.920 --> 00:38:08.119
They get in all kinds of trouble together and they

568
00:38:08.159 --> 00:38:12.400
create even worse havoc in the arterial walls. So we

569
00:38:12.599 --> 00:38:16.920
control that by getting rid of the LDL, like Casey

570
00:38:16.960 --> 00:38:20.440
said below fifty five, get rid of it and your

571
00:38:20.559 --> 00:38:22.920
LPA doesn't have as much to get in trouble with,

572
00:38:23.159 --> 00:38:29.159
so it'll be less dangerous. So two separate things, both

573
00:38:29.199 --> 00:38:33.880
inherited genetics, two separate genes, and yes, you could be

574
00:38:33.960 --> 00:38:37.320
unlucky and get both, but remember one out of five

575
00:38:37.400 --> 00:38:41.519
of us have high LPA and don't know it, and

576
00:38:41.639 --> 00:38:45.360
in the African American community one out of four. So

577
00:38:45.480 --> 00:38:48.280
it's imperative that we all get checked. And if I

578
00:38:48.840 --> 00:38:51.559
could take a minute to talk about our free testing

579
00:38:51.599 --> 00:38:56.679
program or if you want me from Angela, yes, absolutely, okay.

580
00:38:57.199 --> 00:38:59.960
So we have a free testing program through Family Heart

581
00:39:00.079 --> 00:39:06.119
Foundation called Cholesterol Connect. The website for it is Cholesterol

582
00:39:06.559 --> 00:39:10.639
C H O L E S T E R O

583
00:39:11.039 --> 00:39:16.119
L Connect C O N N E c T dot org.

584
00:39:17.000 --> 00:39:19.480
It's a free program where you can order a free

585
00:39:19.519 --> 00:39:23.199
test kit to come to your home and it checks

586
00:39:23.280 --> 00:39:27.559
your lipoprotein A and your lipids, so it'll give you

587
00:39:27.840 --> 00:39:31.719
it's a screening test, so it'll lead you to the

588
00:39:32.119 --> 00:39:35.440
LDL is high or the LPA is high, it'll lead

589
00:39:35.480 --> 00:39:38.239
you to get further screening to see if you have it.

590
00:39:39.960 --> 00:39:44.159
The test is only available. It's available in all states

591
00:39:44.360 --> 00:39:48.519
except New York, New Jersey, and Rhode Island. They have

592
00:39:48.599 --> 00:39:52.519
state laws the prohibit at home testing and right now

593
00:39:52.519 --> 00:39:55.320
it's only for over age eighteen, but we are looking

594
00:39:55.360 --> 00:39:59.000
to get this approved for children. But if every adult

595
00:39:59.199 --> 00:40:01.400
wants this, you at it for free. It's going to

596
00:40:01.440 --> 00:40:03.480
come to your home, you prick your finger, put a

597
00:40:03.559 --> 00:40:07.280
few blood spots on the card, and you get results

598
00:40:07.320 --> 00:40:10.519
in your email and within a couple of weeks. Then

599
00:40:10.559 --> 00:40:13.159
there's a link on the result page when you get

600
00:40:13.199 --> 00:40:18.400
it for care navigation. That's us at the Family Heart Foundation.

601
00:40:19.039 --> 00:40:23.000
We have three care navigators that can help anybody understand

602
00:40:23.000 --> 00:40:26.400
the results. We will schedule a zoom, a text, a

603
00:40:26.400 --> 00:40:33.440
phone call completely free to discuss your results. We can

604
00:40:33.519 --> 00:40:37.159
refer you to a specialist in your area. We have

605
00:40:37.239 --> 00:40:40.480
a Spanish speaking care navigator and we have language lines

606
00:40:40.519 --> 00:40:42.679
so we help people from around the world that have

607
00:40:42.760 --> 00:40:47.239
been diagnosed. We can review guidelines for your treatment LDL

608
00:40:47.320 --> 00:40:51.199
goals based on guidelines, help you with a specialist, refer

609
00:40:51.280 --> 00:40:55.000
you to tons of great resources and webinars on our website,

610
00:40:55.440 --> 00:40:57.519
and then we spend a lot of time talking to

611
00:40:57.599 --> 00:41:01.239
each person that calls in about how important it is

612
00:41:01.280 --> 00:41:05.719
if we see their LPA or their LDLs elevated. It's

613
00:41:05.760 --> 00:41:08.360
important anyway. All children need to be screened, but we

614
00:41:08.559 --> 00:41:13.199
definitely recommend then testing for family members and then we're

615
00:41:13.239 --> 00:41:15.239
happy to follow up with those family members.

616
00:41:15.840 --> 00:41:19.199
We do not give direct medical advice as part of

617
00:41:19.280 --> 00:41:20.960
care navigation. In our role.

618
00:41:21.000 --> 00:41:24.039
Even though I'm a licensed nurse practitioner, I do not

619
00:41:24.039 --> 00:41:26.840
give direct medical advice, but I can tell you what

620
00:41:26.960 --> 00:41:30.159
to ask your doctor about based on guidelines. I can

621
00:41:30.199 --> 00:41:33.760
tell you what criteria is for diagnosis and to ask

622
00:41:33.800 --> 00:41:37.159
your doctor about that and steer you in the right

623
00:41:37.159 --> 00:41:40.960
directions with the right resources. So hopefully that will be

624
00:41:40.960 --> 00:41:42.679
helpful to any of you out there listening.

625
00:41:43.559 --> 00:41:49.679
Oh, you know, chilvers love to do and get something free,

626
00:41:49.880 --> 00:41:52.880
and this is something you can get free that might

627
00:41:52.920 --> 00:41:57.119
save your life in the lives of the generations you

628
00:41:57.159 --> 00:42:02.800
know before you go ahead and contact them and try

629
00:42:02.840 --> 00:42:06.760
out this free testing and find out what's going on

630
00:42:07.039 --> 00:42:13.000
within your body and your family. That's just incredible. I'm

631
00:42:13.039 --> 00:42:17.719
getting mine because I want to know, and then I'm

632
00:42:17.880 --> 00:42:20.880
contacting everybody. I want all of you all to know too.

633
00:42:22.159 --> 00:42:24.920
This is over. My social media is going to be

634
00:42:24.960 --> 00:42:25.559
on fire.

635
00:42:27.199 --> 00:42:27.719
Angela.

636
00:42:27.840 --> 00:42:31.559
I'll just I mean, Anne is a senior care navigator.

637
00:42:31.880 --> 00:42:35.360
The care navigation is just unlike I think you find

638
00:42:35.440 --> 00:42:39.800
in any other organization. It's just a wonderful, wonderful resource,

639
00:42:40.440 --> 00:42:44.679
and as is the Cholesterol connect those free kits. I

640
00:42:44.719 --> 00:42:47.239
wanted to mention that I am a new Yorker and

641
00:42:47.320 --> 00:42:52.119
we're working excuse me hard right now in New York

642
00:42:52.199 --> 00:42:55.639
State to get that law changed here. We've made some

643
00:42:55.679 --> 00:42:59.239
headway and we're hoping, you know, to see some movement

644
00:42:59.280 --> 00:43:02.880
on that here because it's a real you know, it's

645
00:43:02.960 --> 00:43:06.320
really unfair to New Yorkers to not be able to

646
00:43:06.360 --> 00:43:09.840
take advantage of this. I also wanted to mention, as

647
00:43:09.840 --> 00:43:13.239
we talk about all the wonderful resources the foundation offers,

648
00:43:13.880 --> 00:43:19.320
that I host a bi monthly Empower FH webinar, and

649
00:43:19.360 --> 00:43:23.880
then another ambassador hosts a bi monthly empower LP Little

650
00:43:23.960 --> 00:43:28.320
A webinar, and those can be found on the Family

651
00:43:28.360 --> 00:43:32.400
Heart Foundation website, and then the webinars are also replayed

652
00:43:32.440 --> 00:43:36.840
on the YouTube channel, and we try, you know, in

653
00:43:36.920 --> 00:43:40.920
the Empower FH webinars to cover all kinds of topics

654
00:43:41.360 --> 00:43:44.719
that would be helpful. In fact, I think our last

655
00:43:44.719 --> 00:43:48.719
webinar was to ask me anything. We had a cardiologist on,

656
00:43:50.079 --> 00:43:54.679
and the Empower LP Little A calls as well. People

657
00:43:54.719 --> 00:43:59.840
are welcome to join them and ask questions and also.

658
00:43:59.760 --> 00:44:00.960
To watch the replace.

659
00:44:01.079 --> 00:44:05.239
So there's just so many wonderful resources, I think, But

660
00:44:05.320 --> 00:44:07.559
I just really did want to give another shout out

661
00:44:07.559 --> 00:44:11.719
for the care navigation and also the specialist Matt because

662
00:44:11.719 --> 00:44:14.559
people come to the foundation often and don't know what

663
00:44:14.679 --> 00:44:17.119
doctor to see. Who is we like to say nos

664
00:44:17.199 --> 00:44:21.079
f ahe because unfortunately, not all physicians are as well

665
00:44:21.159 --> 00:44:23.679
versed as we hope they will be one day.

666
00:44:24.440 --> 00:44:30.519
Yeah, yeah, this is just incredible information. How can someone

667
00:44:31.079 --> 00:44:35.760
get involved just to share information or whatever it is

668
00:44:35.800 --> 00:44:38.840
that the foundation needs? How does someone get involved?

669
00:44:39.880 --> 00:44:41.440
Yeah, that's a great question.

670
00:44:41.679 --> 00:44:45.239
So we have an Ambassador and volunteer program and we

671
00:44:45.400 --> 00:44:51.639
have three staff members designated to Soley Community Engagement.

672
00:44:51.559 --> 00:44:52.719
And they're fabulous.

673
00:44:52.960 --> 00:44:56.440
And if you're interested, you go on so our web

674
00:44:56.480 --> 00:45:00.199
page that we've been referring to as Familyheart dot org

675
00:45:00.719 --> 00:45:04.519
and if you type in the search button volunteer or ambassador,

676
00:45:04.840 --> 00:45:06.480
it'll bring up a short form.

677
00:45:06.920 --> 00:45:10.320
Put in your name, etteris whatever what you might.

678
00:45:10.199 --> 00:45:13.840
Be interested in, and you'll get an individual call back

679
00:45:14.239 --> 00:45:16.559
with a zoom meeting to have them talk to you

680
00:45:16.639 --> 00:45:21.679
and explain opportunities. So we have a ambassador training once

681
00:45:21.719 --> 00:45:22.159
a year.

682
00:45:22.639 --> 00:45:26.760
We just had it last weekend. We train thirty.

683
00:45:26.480 --> 00:45:30.719
Ambassadors usually about once twice a year and do a

684
00:45:30.760 --> 00:45:34.280
three day zoom three hour training. Sometimes they're in person

685
00:45:34.719 --> 00:45:38.599
where they learn everything we can teach them about FH

686
00:45:38.639 --> 00:45:39.920
and LPA so.

687
00:45:39.880 --> 00:45:42.119
That we can equip them with all the tools they

688
00:45:42.159 --> 00:45:45.320
need to do. They're volunteering a greed.

689
00:45:46.039 --> 00:45:51.039
If listeners remember just one thing from this conversation, what

690
00:45:51.079 --> 00:45:53.039
would you think it should be?

691
00:45:54.119 --> 00:46:01.519
I would say number one, by far is know your numbers. Absolutely,

692
00:46:01.719 --> 00:46:06.719
Every single person should have their LPA and fasting lippets checked.

693
00:46:07.480 --> 00:46:13.719
Know your LDL, know your LPA, and all children and

694
00:46:13.760 --> 00:46:15.440
this is how we're going to nip it in the bud.

695
00:46:16.400 --> 00:46:19.440
All children need to be screened at age nine and

696
00:46:19.559 --> 00:46:22.920
ten and at age two if there's an early family

697
00:46:23.039 --> 00:46:24.000
history of heart disease.

698
00:46:25.639 --> 00:46:30.559
Wow, and Casey, how can our listeners get in touch

699
00:46:30.920 --> 00:46:34.800
with you to purchase your amazing book? Because we all

700
00:46:34.920 --> 00:46:39.960
have catastrophe we do, don't we yet how to navigate

701
00:46:40.079 --> 00:46:40.400
through that?

702
00:46:40.760 --> 00:46:44.320
So thank you, thank you so much for that. Probably

703
00:46:44.599 --> 00:46:47.760
the easiest thing for me to tell the listeners is

704
00:46:47.800 --> 00:46:52.239
that my website is my name, Casey Mulligan Walsh dot

705
00:46:52.280 --> 00:46:55.960
com and on the homepage are all the places to

706
00:46:56.039 --> 00:47:01.000
buy the book, and there are links to my other publications.

707
00:47:01.000 --> 00:47:05.199
But also I have a page on my site that's

708
00:47:05.280 --> 00:47:08.960
called a Living with FH and elevated LP LITTLEA so

709
00:47:09.039 --> 00:47:11.719
you can get to the foundation through my site as well.

710
00:47:12.840 --> 00:47:16.960
I write a monthly newsletter call a Substack newsletter called

711
00:47:17.079 --> 00:47:20.639
Embracing the Full Catastrophe that people can also sign up

712
00:47:20.639 --> 00:47:24.480
for at the website. And in addition to writing about

713
00:47:25.000 --> 00:47:29.519
topics of grief and uncertainty, I always have links to

714
00:47:29.920 --> 00:47:33.280
information at the Family Heart Foundation and to our empower

715
00:47:33.440 --> 00:47:38.280
FH calls. So yeah, if you have Casey Mulligan Walsh,

716
00:47:38.360 --> 00:47:39.760
you can find all of that.

717
00:47:40.599 --> 00:47:44.960
Yeah, yeah, absolutely. Just to know that this is here

718
00:47:45.519 --> 00:47:50.960
and you have an opportunity to maybe deal with with

719
00:47:51.159 --> 00:47:56.239
a situation where you're predisposed to, you know, have these

720
00:47:57.280 --> 00:48:00.159
problems here. It's good to know that you can be

721
00:48:00.239 --> 00:48:05.000
proactive instead of wait until after the first heart attack.

722
00:48:05.079 --> 00:48:06.960
I mean, we don't even need to go there. Let's

723
00:48:07.039 --> 00:48:11.960
be preventative and get our information up front. That's what

724
00:48:12.079 --> 00:48:16.320
a sharp outlook is all about, is informing you so

725
00:48:16.400 --> 00:48:19.599
that you can make decisions, giving you information so you

726
00:48:19.840 --> 00:48:24.800
know what's going on, and you can advise others and

727
00:48:24.880 --> 00:48:28.119
may not be you personally, but you know someone that

728
00:48:28.239 --> 00:48:31.320
might be in this situation, but you know, while you're

729
00:48:31.400 --> 00:48:36.760
standing around the water jug or getting some coffee, you

730
00:48:36.880 --> 00:48:42.199
need to talk about FH and LP little A and

731
00:48:42.280 --> 00:48:44.360
say hey, have you heard anything about it?

732
00:48:44.519 --> 00:48:46.599
Guess what they'll think you're really smart.

733
00:48:46.840 --> 00:48:52.840
So be sure you get that information and tell everybody,

734
00:48:52.960 --> 00:48:55.559
I mean, so that they can go and go to

735
00:48:55.639 --> 00:48:59.519
this website and you know, get this free testing and

736
00:48:59.559 --> 00:49:02.440
find out what's going on. There's so much out there,

737
00:49:02.519 --> 00:49:06.159
and when the percentages are so high, it's not even

738
00:49:06.360 --> 00:49:09.599
worth trying to even pretend that you're going to ignore

739
00:49:09.639 --> 00:49:17.280
this information. Exactly action, Let's flood the social media with

740
00:49:17.400 --> 00:49:21.119
our request and get in our testing, and let's share

741
00:49:21.159 --> 00:49:25.440
it with everyone that we know. You know, love your neighbor.

742
00:49:25.920 --> 00:49:28.840
This is loving your neighbor. Thank you so much, Thank

743
00:49:28.840 --> 00:49:30.079
you this much.

744
00:49:30.760 --> 00:49:34.920
And I mentioned one more thing really quickly. This month

745
00:49:35.159 --> 00:49:38.760
is LPA Awareness Month for the Familyheart Foundation, and we've

746
00:49:38.760 --> 00:49:45.000
created a separate web page. It's LPA aware dot org

747
00:49:45.400 --> 00:49:48.480
where you will find everything you possibly ever need to

748
00:49:48.559 --> 00:49:52.760
know about LPA. And then again, our website is Familyheart

749
00:49:52.760 --> 00:49:55.920
dot org. If you forget the Cholesterol Connect website, if

750
00:49:55.920 --> 00:49:58.599
you go to Familyheart dot org in the top right corner,

751
00:49:58.920 --> 00:50:02.320
you can collect on for all connect test care, Navidate

752
00:50:02.719 --> 00:50:06.960
or care navigation, or any of our other resources so

753
00:50:07.039 --> 00:50:08.920
that hopefully will be helpful.

754
00:50:09.480 --> 00:50:13.320
So you know where to go go get this information.

755
00:50:14.199 --> 00:50:17.400
Thank you ladies for being here today. Thank you for

756
00:50:17.480 --> 00:50:21.519
tuning in to a Sharp Outlook. We're here every Monday

757
00:50:22.000 --> 00:50:26.639
at eleven am Eastern time eight am Pacific time. We're

758
00:50:26.679 --> 00:50:29.800
here to inform you. We're here to give you knowledge.

759
00:50:30.079 --> 00:50:33.840
We're here to help you make good decisions and be

760
00:50:34.000 --> 00:50:39.440
your best self. Thank you, and whatever you do, stay informed.

761
00:50:43.280 --> 00:50:45.440
I want to thank you for joining us on a

762
00:50:45.519 --> 00:50:49.280
Sharp Outlook. We have been informed and energized to take

763
00:50:49.280 --> 00:50:53.000
the next steps. We have posted links to websites and

764
00:50:53.119 --> 00:50:56.920
videos to learn more on today's topic. Please join us

765
00:50:56.920 --> 00:51:01.239
again next week for another thought provoking conversation right here

766
00:51:01.639 --> 00:51:06.440
on k for HD radio and Talk for TV. Listen

767
00:51:06.480 --> 00:51:10.679
to the podcast on all the podcast apps, and until

768
00:51:10.800 --> 00:51:12.960
next week, stay informed.